Dancing Eye Syndrome Support Trust

The Dancing Eye Syndrome Support Group was formed in 1988 with the principal aim of providing a link for parents of children with D.E.S. both locally and nationally. The Dancing Eye Syndrome Trust provides support and information to families of children with Dancing Eye Syndrome.

Video of opsoclonus (dancing eyes)

The Dancing Eye Syndrome Support Group became a trust in 1997, giving parents who may feel isolated an opportunity to talk to others who are in the same situation as themselves and who may have already experienced similar problems. In this way members can provide mutual support and encouragement to parents whose children have been recently diagnosed.

The trust arranges meetings for members and produces a newsletter containing information and ideas which could be useful for families.

Learn more about DES